Max's Fight...

After spending an evening home the Gust family received some bad news. News that we could have never been prepared for. After blood work and some tests that were performed Monday we found out that Max was sick. He had lost 16% of his body weight from birth (1 pound) and had low levels of fluids, especially within his kidneys. Max was diagnosed with Hydrofronosis, which affects the bladder, ureters and kidneys. We rushed Max to Children's Hospital of Wisconsin, Milwaukee Monday evening. Max spent his first night in intensive care. After endless pokes and to many cords to count we prepared for the fight of our lives. On Wednesday a test was performed and confirmed that Max had an extra valve between his bladder and urethra and was causing blockage and reflex of urine back into his bowel and kidneys. A procedure would need to be performed to remove the valve. As we write this blog, we are currently awaiting a larger catheter that is needed to perform the procedure as well as levels within his kidneys to lower.

We have been able to stay by Max's side throughout this painful and trying time. Max is one strong little boy, stronger than his mom and dad at times and is showing no signs of giving up. The good lord has given us the best place to go to with exceptional doctors and nurses, we know that Max is in good hands. We are not sure how long our stay will be here but we are willing to stay as long as we need to to get this little boy strong and healthy.

Thank you for all your love, prayers and support, it is what keeps us going each day. If you would like to get in touch with us you may do so by our cell phones or our direct room number is (414) 607-5224. We will continue to try to keep everyone updated through this blog.